Campaigns Health

Real Carers Week

Reading Time: 3 minutes
Sandra Webster

I am privileged to belong to a group of passionate writers who are called Ungagged. I love them because they share voices that deserve to be heard and often are not. At the end of Carers Week, am proud to be writing for them.

Once a year we carers get patted on the back and told what a fantastic job we do. I think there will come a time when we all realise the love and compassion carers have, make the world a better place. We do what we do at the expense of our own health, there are no health and safety measures put in place. In a past life I was a paid carer a career, fantastic colleagues. I worked in places with great practice. I had time off and paid holidays. My work then could not prepare me for the reality of being an unpaid carer. We care round the clock often 24/7 when our caring role is over many of us have PTSD and are expected to find work quickly. We have much to offer our skills include advocacy, form filling, managing our time effectively. Most employers will look at our “work history” and not regard this as real work. However we do what we do with love in our hearts.

This week has been a rollercoaster for me but is just a typical one. I have read so many stories on social media. Some of us have been tweeting #RealCarersWeek. We live in the shadows and keep the dark times to ourselves; posting pictures about happy times masks how difficult our lives actually are. The stories I have read this week have made me cry and smile and make me realise I am not alone. I rarely get out. I saw a dear friend who is also a carer this week and got to a gig!! I thought I would not get but I have not had a night out on my own for over a year and we made it. It refreshed my batteries but I felt so guilty going. I know many folk will get that.

Carers contribute more than the NHS budget in unpaid care. What would happen if we downed tools but w won’t of course. The Adam Smith foundation presented a paper this week which said women should expect to be unpaid carers. That is the crux of the matter it is mostly seen as “women’s work” though I know more and more men who are carers. Assumptions are made as well as cuts to essential services. I believe in people being seen and part of their community but this is used as an excuse to making cuts to essential services. Such services are crucial and I am all for volunteers and charities but they should not provide essential centres. Language about community care are used as an excuse to make cuts.

So another Carers Week is almost at the end for us though #RealCarersLives continue 52 weeks a year seven days a week. We have to battle and advocate for support for our loved ones forgetting ourselves. Am glad that so many people have shared their stories on #RealCarersWeek this year. It is up to a 1000. I live in hope things will get better this week but in reality doubt it. Am proud on behalf of Ungagged to wish all who care the best, always at your back. Come and share the microphone that is Ungagged and let others hear your story it is an important one. Love and strength to you all. xx

 

You can read more of Sandra’s Ungagged writing here or listen to her on our podcast

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